
With just a small sample of saliva, doctor-ordered or direct-to-consumer genetics tests like 23andMe can provide insight into a person鈥檚 current health and likelihood of developing certain illnesses.
But, according to University of Louisville professor Mark Rothstein, those tests could also provide information for companies deciding, say, whether or not to issue you a mortgage or sell you life insurance.
鈥淭he information could include important risk factors,鈥 said Rothstein, founding director of the Institute for Bioethics, Health Policy and Law at UofL. He recently wrote about its use in life insurance underwriting in .
While federal law says employers and health insurers can鈥檛 discriminate based on genetic information, Rothstein said that the law doesn鈥檛 extend to disability, long-term care, life, or other insurance products.
And of those, he said, 鈥渓ife insurance is the huge gorilla in the room.鈥
According to the , 10.5 million individual life insurance policies were purchased in 2017. For long-term care and disability insurance, Rothstein says the respective number of policies is much smaller, about 100,000 and 550,000 respectively.
As of 2017, millions of people 鈥 possibly 1 in every 25 Americans 鈥 have used at-home genetics tests, according to . And, as it stands, home tests aren鈥檛 in your medical record (unless you put them there), so insurers don鈥檛 have access to that information anyway.
Rothstein said insurers are increasingly concerned that individuals will have more genetic information than they do, so they want access to tests performed in health care settings and might even seek to perform their own testing.
But if they did and could use the results to determine coverage, Rothstein said, people scared of losing life insurance may stop seeking DNA testing that could identify increased genetic risks for some serious conditions, such as genetic-based cancers.
鈥淲e know that a lot of people are not getting genetic testing who would benefit from it,鈥 he said. 鈥淎nd my concern is that we鈥檙e missing an opportunity to save lives because individuals are worried about the economic consequences of genetic tests, and we need to figure out a way to prevent that from happening.鈥
Listen to Rothstein’s full interview on .听


























